Amanda Young Foundation (Perth, Australia)
Since 1998, the Amanda Young Foundation (AYF) has been raising awareness of meningococcal disease in honour of Amanda, who lost her life at just 18 years of age.
AYF makes educational presentations to Perth’s schools, child-care centres, work groups and clubs, as well as funding research and supporting the survivors of meningococcal disease. The organisation has helped change treatment guidelines for suspected cases of the disease.
In 2006 the Japan Child Meningitis Organisation (JaCMO) was established by a group of concerned parents and health professionals. This not for profit organisation's mission is to introduce the Hib vaccine and Pneumococcal vaccine into the Japanese National Immunisation Program (NIP) and to highlight the after effects of meningitis and how to manage these.
The organisation prides itself in being committed to act to protect children from bacterial meningitis, being an independent organisation where decisions are made by its board members free from influence, and in remaining clear about all decisions.
JaCMO provides support and education to patients and their families affected by meningitis and offers regular group meetings to answer parent questions and provide peer support.
Visit the Japan Child Meningitis Organisation website for more information. This website is in Japanese.
The Meningitis Centre was founded in 1992 by a group of concerned parents and health professionals. The Centre is striving to eliminate meningitis in Australia by lobbying for vaccines and educating the community to be aware of the signs and symptoms.
The Meningitis Centre seeks primarily to raise awareness of bacterial meningitis, but also provides information on other types of meningitis, as well as support for families affected by the disease.
Visit The Meningitis Centre website for more information.
The Meningitis Foundation Aotearoa New Zealand was established in 2010 to give all New Zealanders access to quality information and resources to assist in the fight against meningitis in Aotearoa, New Zealand and the Pacific.
The first dedicated source of information about meningitis for individuals, families and healthcare practitioners, its Meningitis Symptom Card, has been distributed to GPs and community groups across New Zealand.
For more information, contact Andrea Brady on +64 21 977 688, email the Meningitis Foundation or visit the Meningitis Foundation Aotearoa New Zealand website.
Meningo.Org was established in 2006 by Rotary Club members with experience at the forefront of disease-prevention campaigns. The group recognised the need to educate Filipinos that meningitis can be prevented through vaccination.
The organisation builds awareness about the serious and debilitating meningitis disease through its ‘STOP MENINGO’ marketing campaign and by directly vaccinating more than 8,000 people to date.
The Philippines Foundation for Vaccination was established in 2000 by a group of committed vaccine advocates.
The foundation aims to improve vaccine availability among children and adults in the Philippines as well as providing standards and guidelines for vaccinating.
This not for profit organisation is composed of pediatric and adult infectious disease experts, local and national public health officials and celebrities.
Visit the Philippines Foundation for Vaccination website for more information.
The Pneumo-Mening Centre was established in 2006 as a not for profit organisation. The Centre’s mission is to prevent death and disability caused by meningitis and other infectious diseases. The Centre will achieve this by promoting health education, as well as accelerating evaluation of and access to new vaccines for children in Taiwan.
The Pneumo-Mening Centre aims to provide support and education to meningitis patients and families, to increase public awareness of meningitis and other infectious diseases, promote a better understanding to healthcare professionals, and to provide funds for research in to improve diagnosis, treatment and prevention of meningitis and other preventable infectious diseases.
Immunization Partners in Asia Pacific (IPAP) was established in 2011 in response to the Siem Reap Declaration of 2009 that called for greater efforts to “ensure that each child is provided protection” and an understanding reached at the 3rd Asian Vaccine Conference in 2011 about the need for a diverse group of partners to study and implement advocacy programs focusing on vaccine-preventable diseases.
IPAP advocates and campaigns for region-wide immunisation coverage through international conferences and discussions.
Formed in 2012, the Korea Meningococcal Meningitis Center (KMC) works with patients and their families to raise awareness of the seriousness of the disease and how to prevent it.
Korea has one of the lowest levels of awareness of meningococcal meningitis in the world. KMC campaigns for preventive measures for meningitis in Korea, using real-life stories from survivors and families to raise awareness and relevancy. Read Jeongjun’s Story.
Parenting2U is a community-driven, non-government organisation that aims to equip parents with knowledge and information about parenting and child health.
The awareness levels of pneumococcal disease remains low in most parts of Malaysia and Parenting2u is driving advocacy efforts to ensure Malaysian families are aware of the meningitis-causing disease and the vaccines available to prevent it.
Through their work, Parenting2u aims to contribute to building a community where everyone believes in promoting the health and wellbeing of children so they can make the most of the opportunities available to them and they can grow up to be strong thinkers and leaders.