Becky Werner Meningitis Foundation (Wisconsin, USA)

The Becky Werner Meningitis Foundation was set up in 2006 after the co-founders’ daughter, Becky, lost her life to the disease. Read Bob and Dee Dee’s Story.

A non-profit organisation, the Becky Werner Meningitis Foundation raises awareness of the dangers of meningitis and methods of prevention, educates the public and medical communities about meningitis, funds research at the Medical College of Wisconsin and provides support to families affected by meningitis, including giving vaccines to those who can’t afford them.

For more information, contact Bob or Dee Dee Werner on +1 262 363 3057, email the foundation or visit the Becky Werner Meningitis Foundation website.

 

Dylan McNeil Foundation (Oregon, USA)

After two-year-old Dylan lost his battle to pneumococcal meningitis in 2009, his mother Sabrina set up the Dylan McNeil Foundation to raise money for research and prevention of meningitis. Read Sabrina’s Story.

Working to inform parents of the importance of vaccination, and the signs and symptoms of the disease, the Foundation has also raised over $32,000 for research at St Jude Children’s Hospital in Tennessee.

For more information, contact Sabrina McNeil on +1 541 944 5322, email the Foundation or visit the Dylan McNeil Foundation website.

 

Emily’s Dash Foundation (Pennsylvania, USA)

The Emily’s Dash Foundation (EDF) is a non-profit, donor – advised fund organised under the auspices of the Chester County Community Foundation (CCCF) in the USA. The EDF was established in memory of Emily Grace Koenig by her parents. Emily was a perfectly healthy child until she contracted bacterial meningitis that suddenly took her life at just 12 years of age.

By building awareness of meningitis and through extensive fundraising, Emily's Dash Foundation is committed to eradicating bacterial meningitis.  For more information visit the Emily’s Dash Foundation website.

 

The Emily Stillman Foundation (Michigan, USA)

The Emily Stillman Foundation was created in 2014 in memory of Emily Stillman, a 19 year old college sophomore who died from Serogroup B Meningococcal Disease. Read Alicia's story.

The mission of the Foundation is twofold.  Firstly, they resolve to raise awareness of all strains of Meningococcal Disease.  They accomplish this through ongoing education and organized vaccination programs. Secondly, they resolve to raise awareness of and encourage organ/tissue donation.  In addition, they offer assistance to families who have been affected by either of these two issues.

The goal of the Foundation is to create a world where all strains of Meningococcal Disease are eradicated and there is no longer a “waiting list” for those in need of an organ transplant. 

For more information, contact Alicia Stillman on +1 248-568-8014, email Alicia, or visit the Emily Stillman Foundation website

 

Fundacion Illyria Velasco Carranza (Mexico)

Fundacion Illyria Velasco Carranza promotes vaccination, provides information to the general public about meningitis, and encourages doctors to talk to their patients about the importance of prevention through vaccination.

 

The Immunization Partnership (Houston, USA)

Since 2002, The Immunization Partnership (TIP) has worked to promote the prevention of vaccine-preventable diseases in Houston, Texas. It does this through community education, advocating for evidence-based public policy and supporting immunisation best practices.

TIP’s Immunization Champion project that took place in 22 clinics over four years raised immunisation rates from 3% to 100%. TIP also helped establish a robust immunisation coalition-building project.

TIP has designed and promoted many positive immunisation bills and worked with The J.A.M.I.E. Group and the Williams family to make the Jamie Schanbaum / Nicolis Williams Act law in Texas in 2011. This law now means all new college students will be vaccinated against the disease.

For more information, contact Maureen Moore on +1 713 376 5927, email Maureen or visit The Immunization Partnership website.

 

Instituto Pedro Arthur (Contagem, Brazil)

After the founder’s son contracted meningitis, Instituto Pedro Arthur was established in 2006 to provide information, help prevent meningitis and reduce child mortality. Read Rodrigo’s Story.

The organisation travels the country to stress the importance of immunisation and fights to stop meningitis in Brazil. They successfully campaigned to have the meningococcal C vaccine included in the National Immunisation Program (Calendar Nacinal).

For more information, contact Rodrigo Diniz on +55 31 8685 1650, email Rodrigo or visit the Instituto Pedro Arthur website.

 

The J.A.M.I.E. Group (Austin, USA)

The Joint Advocacy of Meningococcal Information and Education (or J.A.M.I.E.) Group was set up in 2009 to help meningitis survivor Jamie Schanbaum share her experiences and knowledge about meningitis so that others can avoid this devastating but preventable disease.

The organisation helps lead the fight against meningitis through education and community awareness and by advocating for increased information for students, parents, teachers and the medical profession.

The J.A.M.I.E. Group worked with the The Immunization Partnership and the Williams family to make the Jamie Schanbaum / Nicolis Williams Act law in Texas in 2011, which now means that all new college students will be vaccinated against the disease.

Patsy Schanbaum from The J.A.M.I.E. Group is a member of our Governing CouncilRead Patsy and Jamie’s Story

For more information, contact Patsy on +1 512 468 6654, email Patsy or visit The J.A.M.I.E. Group website.

 

The Kimberly Coffey Foundation (New York, USA)

The Kimberly Coffey Foundation was established in memory of the founder's daughter, Kimberly Coffey, a 17-year-old high school senior from Long Island, New York. Kimberly contracted and died from bacterial meningitis in 2012 just one week before her graduation and prom and three months before starting her college education to pursue her dream of becoming a pediatric nurse.

Kimberly had been up to date on all vaccinations, including meningococcal disease, but she contracted serogroup B meningococcal disease, which did not, at the time, have a vaccine. Read Kimberly's story

In addition to education about meningococcal disease, a very large part of the Foundation’s national awareness and education campaign is to spread awareness of the necessity to be protected by vaccination against all five of the most common serogroups, including serogroup B, which accounts for approximately half of all meningococcal disease among persons aged 17-22 years in the USA. 

For more information, contact Patti Wukovits, RN by emailing the foundation or visit the Kimberly Coffey Foundation website.

Meningitis Awareness Key to prevention (California, USA)

Meningitis Awareness Key to prevention (MAK) is a non-profit health education organisation founded in 2000 after the founder’s daughter MaryJo lost her life suddenly to meningococcal meningitisRead Rose and MaryJo’s Story

MAK is dedicated to increasing public awareness about meningococcal meningitis, its symptoms and transmission, debilitating effects, risks and prevention measures. It provides up-to-date information through awareness presentations with adolescents and young adults, supports meningitis legislation, promotes vaccination and collaborates with other organisations in the prevention of meningitis. 

For more information, contact Rose Kwett on +1 916 484 0822 or +1 916 261 0822, email Rose or visit the MAK website.

 

Meningitis Foundation of America (Arizona, USA)

Established in 1997, the Meningitis Foundation of America (MFA) was the first national non-profit in the USA dedicated to the education, vaccination and eradication of meningitis. It was founded by Dave Spilker, whose son was diagnosed with meningitis at 5 months old.

MFA works to support survivors of meningitis and their families through support groups, as well as advocating for research into the prevention and long-term effects of various meningitis strains, and facilitating programs to educate the public about the causes and symptoms of meningitis.  It also provides scholarships for children who have had meningitis to attend summer camp through its Camp Riley Program.

For more information, contact Caroline Petrie on +1 800 668 1129 or visit the Meningitis Foundation of America website.

 

Meningitis Relief Canada (Ontario, Canada)

Meningitis Relief Canada (MRC) is a registered not for profit charitable organisation that was founded in 2012.

MRC aims to improve the lives of individuals and families affected by the after -effects of meningitis by providing means to heal and rebuild. MRC works to educate and raise awareness of meningitis in Canada, amongst the public and healthcare professionals to prevent death and disability from the disease. MRC also provides support services including grief and bereavement counselling and financial assistance to individuals affected by meningitis in Canada.

For more information please email or visit the Meningitis Relief Canada (MRC) website.

 

Meningitis Research Foundation of Canada (Waterloo, Canada)

The Meningitis Research Foundation of Canada (MRFC) was founded by Kathryn Blain in 1998 after she lost her 19-year-old son, Michael. No meningitis support organisation existed in Canada at the time of Michael’s death. Read Kathryn’s Story

MRFC raises funds to promote education and research in order to prevent death and disability from meningitis. It successfully lobbied the Ontario provincial government to include meningococcal and pneumococcal meningitis vaccines on the province's routine immunisation schedule.

For more information please visit the MRFC website. Mike Redfearn from MRFC is a member of our Governing Council

 

Mollaret's Meningitis Association (Idaho, USA)

Established in 2016, the Mollaret's Meningitis Association (MMA) is the first non-profit in the world dedicated to the awareness, advocacy, and research of Mollaret's Meningitis. Mollaret's Meningitis is also known as Benign Recurrent Lymphocytic Meningitis, and means sufferers will get viral meningitis continuously through their lives.

MMA works to raise awareness, advocate for, and support research into Mollaret's Meningitis around the world.  MMA also provides support services including an active Facebook support group where sufferers can share their experience with others.

For more information please email or visit the Mollaret's Meningitis Association (MMA) website.

 

The Ryan Martin Foundation (Missouri, USA) 

The Ryan Martin Foundation was founded in 2014 by Bryan and Courtney Martin in memory of their son, Ryan, who died from bacterial meningitis at just 14 months of age. Read Ryan's Story.

The charity's mission is to give back to those who need help in Ryan's name. As part of this, they promote awareness of meningitis, support other families dealing with the effects of meningitis and also have a scholarship fund in Ryan's name.

To find out more, email Courtney or visit the Ryan Martin Foundation website.