CoMO brings together patient groups, health professionals and organisations, meningitis survivors and families from more than 30 countries.

Patient groups are organisations representing patients with personal experience of a health condition or disease. Patient groups play a key role in defeating meningitis by using their unique perspectives to improve public awareness, advocate for change and educate and support others affected by the disease. CoMO provides a strong global network for patient groups working together to defeat meningitis.

Many organisations face challenges achieving their goals. They may be small, struggle to fund their activities or lack some of the skills or experience needed to get their message heard.


The Strengthening Patient Voices Project is a collaboration between CoMO and Meningitis Research Foundation (MRF). CoMO brings 15 years of experience working with meningitis patient groups and campaign organisations around the world. MRF is a leading UK, Irish and international charity, established in 1989. MRF has been funding research, advocating, raising awareness and supporting health professionals and people affected by the disease in the UK and Ireland since this time.

MRF and CoMO will use our combined expertise to support three patient groups in Spain, Denmark and the Netherlands to develop the goals, strategies and skills required to strengthen their effectiveness. The organisations will have the opportunity to engage in peer-to-peer support as well as benefiting from one-on-one mentorship from CoMO and MRF.

Objectives:

By participating in this project, patient groups will be better able to:

  1. Advocate for improved access to vaccines.
  2. Raise awareness of more people on the signs and symptoms of meningitis and sepsis and what to do if they recognise them.
  3. Influence health policy to make it more responsive to the needs of people affected by meningitis and sepsis.

Partners

Meningitis Research Foundation Smaller


Participants

Asociación Española Contra La Meningitis (AEM) Small         Bekaemp Meningitis          Nederlandse Meningitis Stichting


Project Updates

Read the latest blog for an insight into the first stages of the project.