Asia Pacific Regional Members
Brainchild Trust (India)
The Brainchild Trust aims to raise awareness and empower children and parents in managing common health conditions. Their focus is on educating the general public about current issues affecting their health and also on providing unbiased information in regional Indian languages. The Trust aims to contribute towards academic activities by organizing CME's (Continuing Medical Education) and workshops in varied medical and non-medical specialties towards educating parents and professionals alike.
Visit the Brainchild Trust website for more information.
The Helping Hands Foundation (Pakistan)
The Helping Hands Foundation (HHF) is involved in health, education and community empowerment through its various programs.
The following projects are currently underway:
Institute of Mother and Child Care (I-MACCA): provides free consultations, laboratory tests, x-rays, vaccination, spirometry, sweat chloride assessment and medicines on outpatient basis.
Coordinated Approach to Child Health (CATCH): Community outreach programme for health education and comprehensive care to the children and mothers. It involves community motivation for various health indicators like antenatal care, vaccination, growth monitoring, disability assessment, breast feeding, hygiene etc.
Initiative for Mother Milk Awareness in Neonates (IMMAN): mothers are encouraged to breastfeed their children as per WHO guidelines.
Child Protection Against Labor And Neglect (Child PALAN): working for the protection and rights of children in schools, hospitals and the community.
Hand Wash and Save Health (Hand WASH): working for the improved hygiene in the hospitals, schools and community.
Paediatric Lung Association (PLA): Working for the asthma, cystic fibrosis, bronchiectasis, chronic lung diseases, tuberculosis & environmental health in paediatrics.
Visit HHF's Facebook for more information.
Japan Child Meningitis Organisation (Japan)
In 2006 the Japan Child Meningitis Organisation (JaCMO) was established by a group of concerned parents and health professionals. This not for profit organisation's mission is to introduce the Hib vaccine and Pneumococcal vaccine into the Japanese National Immunisation Program (NIP) and to highlight the after effects of meningitis and how to manage these.
The organisation prides itself in being committed to act to protect children from bacterial meningitis, being an independent organisation where decisions are made by its board members free from influence, and in remaining clear about all decisions.
JaCMO provides support and education to patients and their families affected by meningitis and offers regular group meetings to answer parent questions and provide peer support.
Visit the Japan Child Meningitis Organisation Facebook page for more information.
Meningitis Centre Australia Inc (Perth, Australia)
Meningitis Centre Australia Inc (MCA) was founded in 1992 by a group of concerned parents and health professionals. The organisation is striving to eliminate meningitis in Australia by lobbying for vaccines and educating the community to be aware of the signs and symptoms.
MCA seeks primarily to raise awareness of bacterial meningitis, but also provides information on other types of meningitis, as well as support for families affected by the disease.
Visit Meningitis Centre Australia Inc website for more information.
Meningitis Foundation Aotearoa New Zealand (Auckland, New Zealand)
The Meningitis Foundation Aotearoa New Zealand was established in 2010 to give all New Zealanders access to quality information and resources to assist in the fight against meningitis in Aotearoa, New Zealand and the Pacific.
The first dedicated source of information about meningitis for individuals, families and healthcare practitioners, its Meningitis Symptom Card, has been distributed to GPs and community groups across New Zealand.
For more information, contact Andrea Brady on +64 21 977 688, email the Meningitis Foundation or visit the Meningitis Foundation Aotearoa New Zealand website.
Philippines Foundation for Vaccination (Philippines)
The Philippines Foundation for Vaccination was established in 2000 by a group of committed vaccine advocates.
The foundation aims to improve vaccine availability among children and adults in the Philippines as well as providing standards and guidelines for vaccinating.
This not for profit organisation is composed of pediatric and adult infectious disease experts, local and national public health officials and celebrities.
Visit the Philippines Foundation for Vaccination website for more information.
Pneumo-Mening Centre (Taiwan)
The Pneumo-Mening Centre was established in 2006 as a not for profit organisation. The Centre’s mission is to prevent death and disability caused by meningitis and other infectious diseases. The Centre will achieve this by promoting health education, as well as accelerating evaluation of and access to new vaccines for children in Taiwan.
The Pneumo-Mening Centre aims to provide support and education to meningitis patients and families, to increase public awareness of meningitis and other infectious diseases, promote a better understanding to healthcare professionals, and to provide funds for research to improve diagnosis, treatment and prevention of meningitis and other preventable infectious diseases.
Public Health Perspective Nepal (जनस्वास्थ्य परिप्रेक्ष्य नेपाल) (Nepal)
Public Health Perspective Nepal is a non-governmental, non-political and non- profit organization of health professionals in Nepal. With the theme Research, Training, and Health Information Sharing, an explicit combination– this association of health experts organizes quality researches, trainings, programs, and development works in both health and related development sectors.
Uplifting the public health awareness level of rural community has been increasingly recognized as a positive factor in promoting the communal wellbeing and standard of living in resource constrained areas and groups particularly minority groups, marginalized and vulnerable people, children, adolescent, women, and elderly person. Utilizing the evidence based, reliable and unbiased result gained from health research, and via trainings of health workforce and publication of health-related newsletter, PHP Nepal works to improve awareness level and conducts useful programs on health education, water and sanitation, environment protection, climate change adaptation, among others. In each activity, it ensures active participation and involvement of community people.
Immunization Partners in Asia Pacific (Manila, Philippines)
Immunization Partners in Asia Pacific (IPAP) was established in 2011 in response to the Siem Reap Declaration of 2009 that called for greater efforts to “ensure that each child is provided protection” and an understanding reached at the 3rd Asian Vaccine Conference in 2011 about the need for a diverse group of partners to study and implement advocacy programs focusing on vaccine-preventable diseases.
IPAP advocates and campaigns for region-wide immunisation coverage through international conferences and discussions.
Korea Meningococcal Meningitis Center (Seoul, Korea)
Formed in 2012, the Korea Meningococcal Meningitis Center (KMC) works with patients and their families to raise awareness of the seriousness of the disease and how to prevent it.
Korea has one of the lowest levels of awareness of meningococcal meningitis in the world. KMC campaigns for preventive measures for meningitis in Korea, using real-life stories from survivors and families to raise awareness and relevancy. Read Jeongjun’s Story.
For more information, contact Hyeran Kim on +82 2 1666 9767, email KMC.
My Health Outreach - Parenting2U (Malaysia)
Parenting2U is a community-driven, non-government organisation that aims to equip parents with knowledge and information about parenting and child health.
The awareness levels of pneumococcal disease remains low in most parts of Malaysia and Parenting2u is driving advocacy efforts to ensure Malaysian families are aware of the meningitis-causing disease and the vaccines available to prevent it.
Through their work, Parenting2u aims to contribute to building a community where everyone believes in promoting the health and wellbeing of children so they can make the most of the opportunities available to them and they can grow up to be strong thinkers and leaders.
Sarah's Recovery (NSW, Australia)
Sarah has been battling the effects of Meningococcal Disease since August 2016. Originally, Sarah’s Recovery was a Facebook page that kept friends and family updated on Sarah's journey, but it has since grown into a caring community of almost 1k followers. As Sarah's Recovery is continuing - over a year on after creating this page – it has become a place for people to learn about Meningococcal Disease and follow Sarah's ups and downs. Her battle has been a hard one, but she is determined to use her story to help others and raise awareness about vaccination and prevention. For more information, please visit her Facebook page Sarah's Recovery.
Sarah has also since gone on to create her own NGO to keep raising awareness of meningococcal disease. Learn more about her work on the Sarah Joyce Project Facebook page.
Friends of CoMO
Jessica Langoulant - Western Australia
I am a lifelong advocate for meningitis prevention after growing up helping to care for my sister who suffered significant disabilities and will consequently require full-time care for the rest of her life due to pneumococcal meningitis. I have volunteered with the Meningitis Centre Australia for more than 10 years and also worked with CoMO managing communications and projects between 2011 and 2014.
Professor Kyaw Linn - Myanmar
I am the professor of pediatric neurology, working in Yangon children hospital, Myanmar. We see many cases of CNS infections in our day-to-day practice and also children with complications of those CNS infections, like cerebral palsy, epilepsy, global delay, etc. Therefore, I'd like to learn as well as share our experience and I'd like to get support from CoMO regarding those children and families. You can contact me: email@example.com.
Shalini Mahtani - Hong Kong
Shalini lost her first-born child, Zubin, to pneumococcal meningitis as a result of medical negligence in Hong Kong. Zubin was the love of her life and his death has had a profound impact on her. She has set up The Zubin Foundation to honour of his life.
Shalini is one of Hong Kong’s most authoritative voices on social issues particularly on diversity and inclusion. She has received many accolades globally including an MBE from Her Majesty Queen Elizabeth II.
Dr Zulkifli Ismail - Selangor, Malaysia
Consultant Paediatrician & Paediatric Cardiologist in a private hospital.
Former Professor at Universiti Kebangsaan Malaysia (UKM) and current Adjunct Clinical Professor at KPJ University College of Healthcare (KPJUC).
Secretary General of Asia Pacific Pediatric Association (APPA) – Former President of APPA (2012-2016).
Exec Committee member of Malaysian Paediatric Association (MPA) – Former President of MPA.
Standing Committee member of International Pediatric Association (IPA).
Former Chair, Asian Strategic Alliance for Pneumococcal disease prevention (ASAP).
Former Chair, Asia Dengue Voice & Action (ADVA) Group and current member.
Member, Rotavirus Organization of Technical Allies (ROTA) Council.
Chairman, Positive Parenting Management Committee.
Chairman, Immunise4Life programme.
Marisse J. Adaya - Philippines
I was a diagnosed with meningitis when I was 2 year old, but luckily I survived with no after effects and finished my studies as an Electronics Engineer. Now I am 28 year old and currently working in a telecommunication company here in the Philippines as a Project Auditor. I want to spread awareness about meningitis, as I don’t want to see people die because of meningitis when there is a vaccine available to prevent some strains of the disease.
Zanidia Multazamia - Indonesia
After recovering from Tuberculosis Meningitis in 2016, I initiated a meningitis support group based in Indonesia which you can find on Instagram (@MeningitisIndonesia) and Whatsapp group. Don't hesitate to follow and send your number via our Instagram page to join the support group! We currently have more than 50 members consisting of patients, survivors, relatives of patients, and those who lost their loved ones from meningitis from all over Indonesia who are willing to share, support, and comfort one another. We are happy to welcome anyone who wishes to join our small community.
Dr Setyo Handryastuti - Jakarta, Indonesia
I have been a neuropediatrician for the last 14 years and a lecturer at the Faculty of Medicine, Universitas Indonesia. My interests in the field of child neurology are neurobehavior, neonatal neurology and cerebral palsy. I am also a member of Neurology Working Group IPS, AONA ICNA, EPNS, and GMI.
My activity includes teaching medical students, pediatric residents and fellows of pediatric neurology. I am a practicing doctor at Cipto Mangunkusumo Tertiary General Hospital, Jakarta, which is an Indonesian Top Referral Hospital and also practice in private hospitals. As a member of Neurology Working Groups IPS, I actively provide seminars and trainings in the field of pediatric neurology for general practitioners and pediatricians in Indonesia, and participate in developing the curriculum for pediatricians and pediatric neurology subspecialists. I also do some research in the field of epilepsy and cerebral palsy.