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Privacy Policy

At the Confederation of Meningitis Organisations (CoMO), we are committed to maintaining the trust and confidence of visitors to our website. We do not share, sell or rent email lists to any other organisations for marketing purposes. The following Privacy Statement will help you understand how the CoMO website collects, uses, and safeguards the personal information you provide on or through our website.

How we collect information:

  • Sign up to our e-newsletter

  • Submit an enquiry through our website or directly

  • Become a member or request to become a member

  • Contact us by other means


What information we collect:

  • Your name

  • Your contact details (email address, postal address, phone number, social media ID)

  • If you apply for a job with us, information such as employment status, past work experience, references and any criminal convictions

  • If you apply to become a CoMO member, your personal experience with meningitis where applicable, registration information for organisations

  • If you become a CoMO member and are an organisation, information about how you work, including volunteer numbers, staff numbers, mission, financial situation.

  • Information about your use of our website(s), including the device you are using, the pages you visit, your IP address and your geographical location. See below for more information on Cookies.

  • Any other personal information you provide to us.


In some cases, we will collect additional information from you that is more sensitive in nature. For example, health information if you contact us with an enquiry or a story for our website. We only ever ask for this information if it is necessary for us to make a decision and we will always make clear why we are requesting it.


Use of Cookies

Like many other websites, the CoMO website uses "cookies" to collect information about how you use it. Cookies are small data files which are placed on your computer or other devices (such as smart phones or tablets) as you browse this website. They are used to "remember" when your computer or device accesses our website. 

When someone visits we use a third-party service, Google Analytics, to collect standard internet log information and details of visitor behaviour patterns. We do this to find out things such as the number of visitors to the various parts of the site. This information is only processed in a way which does not identify anyone. We do not make, and do not allow Google to make, any attempt to find out the identities of those visiting our website.

CoMO e-newsletters

As part of the registration process for our quarterly e-newsletter, we collect personal information. We use that information for a few reasons: to tell you about things you’ve asked us to tell you about; to contact you if we need to obtain or provide additional information; to check our records are correct and to check every now and then that you’re happy and satisfied. We don't rent or trade email lists with other charities or businesses.

We use a third-party provider, MailChimp, to deliver our newsletter. We gather statistics around email opening and clicks using industry standard technologies to help us monitor and improve our e-newsletter. For more information, please see MailChimp’s privacy notice. You can unsubscribe from general mailings at any time by clicking the unsubscribe link at the bottom of any of our emails.

Individuals’ Rights​

Individuals have certain rights over their personal data and data controllers are responsible for fulfilling these rights as follows:

  • Individuals may request access to their personal data held by us as a data controller.

  • Individuals may request us to rectify personal data submitted to us or, where appropriate, contact us via the relevant website registration page or by amending the personal details held on relevant applications with which they registered.

  • Individuals may request that we erase their personal data.

  • Where we process personal data based on consent, individuals may withdraw their consent at any time by contacting us or clicking on the unsubscribe link in an email received from us. 

  • Individuals may have other rights to restrict or object to our processing of personal data and the right to data portability.

  • Individuals may request information about, or human intervention into, any automated data processing that we may undertake.

If you wish to exercise any of these rights, please contact



We hope that you won’t ever need to, but if you do want to complain about our use of personal data, please send an email with the details of your complaint to We will investigate and respond to any complaints we receive.

You also have the right to lodge a complaint with the UK data protection regulator, the Information Commissioner's Office (“ICO”). For further information on your rights and how to complain to the ICO, please refer to the ICO website

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